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The Scandinavian Association for Glycogen Storage Disease (SAGSD) was established in 2011 with a goal of improving care for children and adults with glycogen storage disease (GSD). The primary aim of the SAGSD is to facilitate interactions between families and health-care professionals to allow sharing of information regarding these rare conditions.
Glycogen Storage Disease (GSD) is a rare genetic disorder that affects the body’s ability to process and store simple carbohydrates, such as glucose.
See how our member and family stories can inspire you to live better with GSD.
For some the challenge starts at birth as for Casper, 13 years old, with Glycogen Storage Disease type 1b. A potential life threatening disease, if a doze of cornstarch is missed his blood sugar will rapidly drop and he is at risk of having a seizure. Lifelong he needs to be meticulous and frequently take fingers pricks, day and night, to make sure his blood sugar is normal.
Others seek the ultimate challenge like Ludvig Landgren and Sarah Fager. On April 28, 2024 they will start a 250 km ultramarathon in the Namibian dessert. In 6 days they will run in temperatures likely to pass 40 degrees, be blasted by sandstorm, jumping and climbing over rocks and carrying all their food and equipment in their backpack. Even if they are prepared and ready for this race, they hope that by raising money for a good cause, will empower them even more and help them reach the finish line on May 4, 2024.
If you wish to donate and support Casper and the SAGSD, please click on this link to Ludvig and Sarah’s fundraising page:
Thank you in advance,
Ludvig, Sarah, Casper, and Marcus
Event details for the 2024 SAGSD Conference.
Welcome to the 6th SAGSD Conference May 3 to 4 at Klitterhus hotel in Ängelholm, Sweden.
We are happy that so many presenters have accepted the invitation, so that we can offer a very interesting program regarding the liver types of Glycogen Storage Disease.
We are excited about the event and hope to see many new and old faces in Ängelholm
Best regards,
Jessica, Louise, and Marcus
Board of the SAGSD
Vores formand Marcus Landgren er nomineret til Sjældne-Prisen 2024. Den uddeles af Sjældne Diagnoser i Danmark til en person som har gjort en særlig indsats for patienter med sjældne sygdomme. Det synes vi SAGSD-medlemmer i den grad at Marcus har gjort.
If you would like to become a sponsor and read more about sponsorship. Click the button below to be redirected to the sponsor page.
“We at the SAGSD association are very grateful for the work that Ranknest AB has done with creating our new website at such short notice therefore we would like to dedicate this little thank you for them.”
We are here for you. If you have any questions or concerns, you are welcome to contact us.
The Scandinavian Association for Glycogen Storage Disease (SAGSD) provides support and help for individuals and families affected by hepatic (liver) types of Glycogen Storage Disease (GSD).
Our information does not replace or go above personalized medical advice.
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