Scandinavian Association for Glycogen Storage Disease

Helping families with GSD to better treatment and connecting healthcare professionals

 

Svenska 

Detta är en patientförening för familjer med glykogenos eller som det också kallas Glycogen Storage Disease (GSD). Det är ett nätverk för personer med alla typer av GSD i Sverige, Danmark och Norge. Genom nätverket kan vi utbyta information och lära oss av varandra. Medlemskap kostar bara 100 SEK/år. Kontakt oss for mer info. Läs mer om GSD: Socialstyrelsen

 

Dansk

Dette er en patientforening for familier med glykogenose eller Glycogen Storage Disease (GSD). Vores hensigt er et netværk for personer med alle typer af GSD i Sverige, Danmark og Norge. Gennem netværket kan vi udveksle oplysninger og lære af hinanden. Medlemskab koster 100 DKK/år. Kontakt os for mere info.

 

Norsk

Dette er en pasientforening for familier med glykogenose eller Glycogen Storage Disease (GSD). Vores hensigt er et nettverk for personer med alle typer GSD i Sverige, Danmark og Norge. Gjennom nettverket kan vi utveksle informasjon og lære av hverandre. Medlemskap koster bare 100 NOK/år. Kontakt oss for mer info.

Past activities

May 14-15, 2016

SAGSD Conference, Ängelholm, Sweden


May 1-3, 2015

SAGSD Patient meeting

Munka Ljungby, Sweden


May 17-18, 2014

SAGSD Conference, Ängelholm, Sweden


May 2, 2013

Fundraising for SAGSD, Copenhagen, Denmark


April 27-28, 2013

SAGSD Patient Meeting, Ängelholm, Sweden


May 5-6, 2012

SAGSD Conference, Ängelholm, Sweden


August 28, 2011

Fundraising for SAGSD, Århus, Denmark


August 18, 2011

GSD Meeting on Type I, III, VI and IX for Scandinavian doctors and dietitians, Copenhagen, Denmark

Next patient meeting

May 12-14, 2017

Havnsø, Denmark

Invited are members of the

Scandinavian Assocation

for Glycogen Storage

Disease

 

The Scandinavian Association for Glycogen Storage Disease provides support and help for individuals and families affected by GSD. We will help doctors, dietitians and patients establishing contact, providing information and holding conferences and meetings. The SAGSD has members from Sweden, Denmark, Norway and Finland, both children and adults are members. So far we have 20 patients with several different GSD types in our association: Von Gierke’s disease (GSD I), Pompe’s disease (GSD II), Cori’s disease (GSD IIIa) and GSD IX. Find out more about our association by exploring the menus above.

Glycogen is a stored form of glucose, which is used as a fuel for energy. Glycogen Storage Disease (GSD) or glycogenosis occurs when there is an absence or deficiency of an enzyme needed to produce or break down glycogen in the body. GSD primarily affects the liver and/or muscles.

 
 

Meet the elite

Join the patients, doctors, dietians, and researchers

at Gronningen 15-17 June 2017


4th International GSD Conference

www.igsd2017.com

 

Newsletter available for paying members!

Join the SAGSD!