Scandinavian Association for Glycogen Storage Disease

    Helping families with GSD to better treatment and connecting healthcare professionals


SAGSD sponsors

Society for the Study of Inborn Errors of Metabolism


Detta är en patientförening för familjer med glykogenos eller som det också kallas Glycogen Storage Disease (GSD). Det är ett nätverk för personer med lever typer av GSD i Sverige, Danmark och Norge. Genom nätverket kan vi utbyta information och lära oss av varandra. Medlemskap kostar bara 100 SEK/år. Kontakt oss for mer info.

Läs mer om Glycogen Storage Disease på nedanstående länk: Socialstyrelsen



Dette er en patientforening for familier med glykogenose eller Glycogen Storage Disease (GSD). Vores hensigt er et netværk for personer med lever typer af GSD i Sverige, Danmark og Norge. Gennem netværket kan vi udveksle oplysninger og lære af hinanden. Medlemskab koster 100 DKK/år. Kontakt os for mere info.



Dette er en pasientforening for familier med glykogenose eller Glycogen Storage Disease (GSD). Vores hensigt er et nettverk for personer med lever typer GSD i Sverige, Danmark og Norge. Gjennom nettverket kan vi utveksle informasjon og lære av hverandre. Medlemskap koster bare 100 NOK/år. Kontakt oss for mer info.

Past activities

May 10-12, 2019

SAGSD Patient meeting

Oslo, Norway

April 28-29 2018

SAGSD Conference

Ängelholm, Sweden

May 12-14, 2017

SAGSD Patient meeting

Havnsø, Denmark

May 14-15, 2016

SAGSD Conference, Ängelholm, Sweden

May 1-3, 2015

SAGSD Patient meeting

Munka Ljungby, Sweden

May 17-18, 2014

SAGSD Conference, Ängelholm, Sweden

May 2, 2013

Fundraising for SAGSD, Copenhagen, Denmark

April 27-28, 2013

SAGSD Patient Meeting, Ängelholm, Sweden

May 5-6, 2012

SAGSD Conference, Ängelholm, Sweden

August 28, 2011

Fundraising for SAGSD, Århus, Denmark

August 18, 2011

GSD Meeting on Type I, III, VI and IX for doctors and dietitians, Copenhagen, Denmark


The Scandinavian Association for Glycogen Storage Disease (SAGSD) provides support and help for individuals and families affected by hepatic (liver) types of Glycogen Storage Disease (GSD). We will help doctors, dietitians and patients establishing contact, providing information and holding conferences and meetings.  The SAGSD has members from Sweden, Denmark, Norway and Finland, both children and adults are members. We represent all the liver types of GSD in our association.

Glycogen is a stored form of glucose, which is used as a fuel for energy. Glycogen Storage Disease or glycogenosis occurs when there is an absence or deficiency of an enzyme needed to produce or break down glycogen in the body. GSD primarily affects the liver and/or muscles.

The 5th SAGSD conference, May 9-10 2020

We expect about 60-80 participants with interest in GSD from all Scandinavian countries to join the SAGSD conference. The conference starts with a lunch Saturday May 9, lectures will be held in the afternoon and a dinner in the evening. On Sunday, there will be separate session for doctors/dietitians  and patients/families in the morning and the conference ends after lunch Sunday May 10 2020.

Come and learn about GSD at beautiful Klitterhus!



A video from the 4th SAGSD conference April 28-29 2018 in Ängelholm, Sweden.

Thank you all for participating and helping with the video!

Visit the Priority Setting Partnership website for hepatic GSD!

Support the SAGSD to continue to hold conferences by buying a runners T-shirt for €40.

Order your T-shirt by sending us an email and we will send you the T-shirt and invoice