We had a great SAGSD patient association meeting in Havnsø, Denmark. The meeting this year was attended by Danish and Swedish patients from 7 families representing the types GSD Ia, GSD Ib, GSD IIIa and GSD IXa. The purpose of the meeting was to get to know new families and give each other support.
A new board member was also decided on. We welcome Anna Tómas-Aminoff replacing Jessica Andersson. We also thanked Jessica for the last two years and all the work she has done for the association.
The dates were also decided on for the next conference.
Save the dates for the upcoming SAGSD conference for patients, dietitians and doctors in Ängelholm in May 29-30, 2026.
Thank you all for attending the 2024 SAGSD Conference.
Thank you all for participating SAGSD 6th GSD conference for doctors, dietitians, and patients at Klitterhus Hotel in Ängelholm, Sweden 2024.
Its lovely to see the connecting between healthcare professionals, nationally and internationally together with patients, adults and kids. Sharing and providing information about this rare condition. Giving support and putting people in contact. A combined conference where healthcare professionals sit side-by-side with patients and families enabling interactions and learning from each other. Many interesting lectures and sessions were held from several renowned speakers. Together we improve the care for children and adults with glycogen storage disease (GSD). This has only been possible due to so many peoples interrest in attending and giving their support, both morally and economically! Thank you all! We hope to see many new and old faces in Ängelholm at the next conference the 8-9 May 2026..
Best regards,
Jessica, Louise, and Marcus
Board of the SAGSD
May 2-4 2025 SAGSD Patient meeting in Havnsø
May 3-4 2024 SAGSD Conference Ängelholm, Sweden
May 5-7, 2023 SAGSD Patient meeting Gothenburg, Sweden
May 14-15 2022 SAGSD Conference Ängelholm, Sweden
May 30, 2021 SAGSD annual meeting Online
May 10-12, 2019 SAGSD Patient meeting Oslo, Norway
April 28-29 2018 SAGSD Conference Ängelholm, Sweden
May 12-14, 2017 SAGSD Patient meeting Havnsø, Denmark
May 14-15, 2016 SAGSD Conference, Ängelholm, Sweden
May 1-3, 2015 SAGSD Patient meeting Munka Ljungby, Sweden
May 17-18, 2014 SAGSD Conference, Ängelholm, Sweden
May 2, 2013 Fundraising for SAGSD, Copenhagen, Denmark
April 27-28, 2013 SAGSD Patient Meeting, Ängelholm, Sweden
May 5-6, 2012 SAGSD Conference, Ängelholm, Sweden
August 28, 2011 Fundraising for SAGSD, Århus, Denmark
August 18, 2011 GSD Meeting on Type I, III, VI and IX for doctors and dietitians, Copenhagen, Denmark
The Scandinavian Association for Glycogen Storage Disease (SAGSD) provides support and help for individuals and families affected by hepatic (liver) types of Glycogen Storage Disease (GSD).
Our information does not replace or go above personalized medical advice.
