Scandinavian Association for Glycogen Storage Disease

The Scandinavian Association for Glycogen Storage Disease (SAGSD) was established in 2011 with a goal of improving care for children and adults with glycogen storage disease (GSD). The primary aim of the SAGSD is to facilitate interactions between families and health-care professionals to allow sharing of information regarding these rare conditions.

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Glycogen Storage Disease (GSD)

Glycogen Storage Disease (GSD) is a rare genetic disorder that affects the body’s ability to process and store simple carbohydrates, such as glucose.

Members & Families stories

See how our member and family stories can inspire you to live better with GSD.

Conference Announcement

Event details for the 2024 SAGSD Conference.

The 2024 Conference is scheduled for May 3-4 at Klitterhus (reserved) in Ängelholm, Sweden, organized by SAGSD Conference.

We’re excited to announce the participation of Dr. Terry Derks and Dr. David Weinstein. Save the date and stay tuned for further details.

Hope to see you there!

Best Regards,

Jessica, Louise, and Marcus

The SAGSD president has been nominated a honorary rare disease prize for all the work he has done over the years for GSD patients.

Vores formand Marcus Landgren er nomineret til Sjældne-Prisen 2024. Den uddeles af Sjældne Diagnoser i Danmark til en person som har gjort en særlig indsats for patienter med sjældne sygdomme. Det synes vi SAGSD-medlemmer i den grad at Marcus har gjort.

Marcus Landgren Nomineret til Sjaeldne prisen 2024 1 scaled

Some of our sponsors

If you would like to become a sponsor and read more about sponsorship. Click the button below to be redirected to the sponsor page.

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Thank you!

“We at the SAGSD association are very grateful for the work that Ranknest AB has done with creating our new website at such short notice therefore we would like to dedicate this little thank you for them.”

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