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Privacy policy

We care about your data. Your personal integrity and our handling of your personal data is important to us. In order for you to feel secure about how we at SAGSD process your data, we want to tell you what applies. Your integrity is important to us. We are therefore keen that the personal data collected about you is stored and handled in a safe and secure manner, and in accordance with data protection legislation.

What is personal data?

Personal data is all information that can be directly or indirectly (i.e. together with other data) linked to you, e.g. name, email,  number and IP address.

Personal data policy

In order for SAGSD to be able to offer you the best possible care and service, we need to collect and use certain personal data. Through this personal data policy, we explain what information we collect, how it is used, in which situation we share information and the choices you can make regarding that information. We care about your integrity and process your personal data in accordance with the GDPR (dataskyddsförordningen)

Personal data we handle and collect

In order for SAGSD to be able to offer you the best possible care and service, we need to collect and use certain personal data. Through this personal data policy, we explain what information we collect, how it is used, in which situation we share information and the choices you can make regarding that information. We care about your integrity and process your personal data in accordance with the GDPR (dataskyddsförordningen) and the Patient Data Act.

  • In connection with care contact in the form of name, email address.
  • Through your contacts with us, for example when you email us
  • When you visit our website, that is: traffic data, location data, web blogs and other communication data such as your IP address, device, operating system and browser type that you use during your visit.

What do we use your data for?

We use your personal data to be able to carry out treatment and record your visits with us. In order to be able to give you the best possible care, we need your personal and health information. This is statutory when it comes to, for example, record keeping as we need to administer your care.
 
We use your data for communication with you.
 
You agree that information about your health is transmitted electronically via images and sound via encrypted video link, chat and via analysis tools.

What do we use your data for?

We use your data for communication with you.

Your rights

Information and access to your personal data

Possibility of correcting incorrect information

Possibility to get information in rows

Objections

Right to restriction of processing

The Swedish Data Protection Authority

You have the right to contact the Swedish Data Protection Authority with a complaint if you believe that we are processing your personal data incorrectly.

The Scandinavian Association for Glycogen Storage Disease (SAGSD) provides support and help for individuals and families affected by hepatic (liver) types of Glycogen Storage Disease (GSD). 

Our information does not replace or go above personalized medical advice.

  • Orgnr: 802461-2312
  • Lotshusgatan 43 216 41 Limhamn, Sweden
  • info@sagsd.org
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