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GSD has no cure yet and living with this disease is a 24-7-365 continous work for patients and families. Here is a collection of stories from people who have generously shared their experiences of living with GSD. Patients‘ stories is a great help to newly diagnosed patients and their families. Would you like to share your own experience? Contact us for more information.
The Scandinavian Association for Glycogen Storage Disease (SAGSD) provides support and help for individuals and families affected by hepatic (liver) types of Glycogen Storage Disease (GSD).
Our information does not replace or go above personalized medical advice.
